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Accessibility matters - A tale of two days out

March 13, 2023 by Laura Barnet in Coping strategies, ME / CFS, Fatigue

Well thought out accessiblity and inclusivity makes such a huge difference for many people. I have been venturing out more recently and there were two venues in particular who showed great and not so great examples of this.

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March 13, 2023 /Laura Barnet
accessibility, inclusivity, Chronic Fatigue
Coping strategies, ME / CFS, Fatigue
2 Comments

6 things your spoonie colleague wants you to know.

July 25, 2022 by Laura Barnet in ME / CFS, Fatigue

If you are working with someone who suffers from a condition that involves chronic fatigue, how can you learn what that means and how best you can support them or at least not make things worse for them! Here’s my thoughts on working with spoonies.

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July 25, 2022 /Laura Barnet
support, ME, spoonies
ME / CFS, Fatigue
2 Comments

Four against one isn't fair

January 19, 2020 by Laura Barnet in mental health, ME / CFS, Fatigue

Fatigue, Pain, Anxiety and Depression. One at a time is bad enough but when they gang up on you it really isn’t a fair fight.

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January 19, 2020 /Laura Barnet
mental health, ME, anxiety
mental health, ME / CFS, Fatigue
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Healing is not linear

August 07, 2019 by Laura Barnet in Coping strategies, ME / CFS, Fatigue

Healing is not linear. It’s not easy or straight forward. Here’s how I feel right now about my journey to recovery.

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August 07, 2019 /Laura Barnet
myalgic encephalomyelitis, ME
Coping strategies, ME / CFS, Fatigue
Comment

Gift ideas for spoonies and warriors!

November 21, 2018 by Laura Barnet in ME / CFS

if you know someone like me with ME or a similar chronic illness where the person you're shopping for may struggle with fatigue, mobility or pain or where they may not cope with leaving the house much (or at all) you may be at a loss of what to get them as a gift.

Here are some ideas will at least give you a little inspiration when it comes to picking out the perfect present.

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November 21, 2018 /Laura Barnet
gifts, hygge, christmas
ME / CFS
Comment

Happy Anniversary to ME?

August 18, 2018 by Laura Barnet in Coping strategies, ME / CFS

Last summer was when I had to admit that my ME flare up was actually pretty significant and I needed help. So at my ME anniversary, what have I learnt about myself and life with ME?

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August 18, 2018 /Laura Barnet
self-care, support, myalgic encephalomyelitis, ME, happiness
Coping strategies, ME / CFS
2 Comments

Everybody needs good neighbours

March 02, 2018 by Laura Barnet in ME / CFS

As the song goes, "neeeiighhbours, everybody needs good neeeigghhbours!" and that's definitely true for me. Tonight I can relax and switch off my worried little brain because I know I have help nearby and that I'm not as alone as ME can sometimes make me feel, that help is nearby if/when I need it.

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March 02, 2018 /Laura Barnet
support, myalgic encephalomyelitis, ME
ME / CFS
1 Comment

Little things

February 25, 2018 by Laura Barnet in Coping strategies, ME / CFS

They say it's the little things that count,  well since my ME started getting worse again, I can definitely say there's been a whole load of little things that have really made a difference. They might not have magically cured me but they have absolutely helped me in so many different ways. 

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February 25, 2018 /Laura Barnet
ME, myalgic encephalomyelitis, support
Coping strategies, ME / CFS
Comment

My week: A few steps forward

October 08, 2017 by Laura Barnet in Coping strategies, ME / CFS

It's been a week of more ups and than downs. I've taken a few steps forward and I'm feeling pretty happy.

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October 08, 2017 /Laura Barnet
Coping strategies, ME / CFS
1 Comment

Looking after future me

August 11, 2017 by Laura Barnet in Fatigue, Coping strategies, ME / CFS

A little post about things I've done in the past which are helping me today. How I've tried to look out for my future self.

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August 11, 2017 /Laura Barnet
ME, CFS, hygge, support, Chronic Fatigue
Fatigue, Coping strategies, ME / CFS
2 Comments

Things that make me happy: cartoons, doodles & comic books

April 17, 2017 by Laura Barnet in Things that make me happy, ME / CFS, Coping strategies

This is the first in a series of posts I'm planning to write, sharing some of the things and people that help me feel happy. First up, cartoons, doodles and comic books.

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April 17, 2017 /Laura Barnet
Things that make me happy, ME / CFS, Coping strategies
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