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Accessibility matters - A tale of two days out
Well thought out accessiblity and inclusivity makes such a huge difference for many people. I have been venturing out more recently and there were two venues in particular who showed great and not so great examples of this.
6 things your spoonie colleague wants you to know.
If you are working with someone who suffers from a condition that involves chronic fatigue, how can you learn what that means and how best you can support them or at least not make things worse for them! Here’s my thoughts on working with spoonies.
Four against one isn't fair
Fatigue, Pain, Anxiety and Depression. One at a time is bad enough but when they gang up on you it really isn’t a fair fight.
Healing is not linear
Healing is not linear. It’s not easy or straight forward. Here’s how I feel right now about my journey to recovery.
Gift ideas for spoonies and warriors!
if you know someone like me with ME or a similar chronic illness where the person you're shopping for may struggle with fatigue, mobility or pain or where they may not cope with leaving the house much (or at all) you may be at a loss of what to get them as a gift.
Here are some ideas will at least give you a little inspiration when it comes to picking out the perfect present.
Happy Anniversary to ME?
Last summer was when I had to admit that my ME flare up was actually pretty significant and I needed help. So at my ME anniversary, what have I learnt about myself and life with ME?
Everybody needs good neighbours
As the song goes, "neeeiighhbours, everybody needs good neeeigghhbours!" and that's definitely true for me. Tonight I can relax and switch off my worried little brain because I know I have help nearby and that I'm not as alone as ME can sometimes make me feel, that help is nearby if/when I need it.
Little things
They say it's the little things that count, well since my ME started getting worse again, I can definitely say there's been a whole load of little things that have really made a difference. They might not have magically cured me but they have absolutely helped me in so many different ways.
My week: A few steps forward
It's been a week of more ups and than downs. I've taken a few steps forward and I'm feeling pretty happy.
Looking after future me
A little post about things I've done in the past which are helping me today. How I've tried to look out for my future self.
Things that make me happy: cartoons, doodles & comic books
This is the first in a series of posts I'm planning to write, sharing some of the things and people that help me feel happy. First up, cartoons, doodles and comic books.